Due to my recent travels, I have only gone for dialysis two out of the last ten days.
And I feel okay.
I am livid that, after fourteen months, the doctors and staff have not gotten the message that I do not need to have any fluid removed.
I am livid that it doesn’t seem the suffering I experience on dialysis is necessary. I’m not saying that I don’t need to be on dialysis. But I clearly haven’t needed 10-1/2 hours every week (and 24 hours of nocturnal dialysis before that.)
The treatment almost always gives me flu-like symptoms for several hours following treatment, not to mention for one to hours of severe symptoms during the treatment itself.
The treatment is worse than the illness.
And then there’s the staff that couldn’t manage a McDonald’s. They are constantly screwing up the scheduling, giving me a hard time when I come on time and rambling on to me how management has made mistake with their schedule. I’ve recently found that the required visit from a nurse hasn’t happened. It’s hard to get anyone’s attention when something is going wrong.
I don’t trust the people working the floor or running the facility. This has been the case at both facilities.
I don’t trust the doctors who have zero to little interest in the day-to-day operations of the clinics.
I’m sure they do whatever they have to do to keep their certifications. They may not have flat-out killed anyone lately. But everytime I go in there, I do feel like my life is at risk. One mental lapse, and who knows what disasters can occur.
Doctors and dialysis staff suggest, “Have you tried home hemo?”
No, I live by myself, and that’s not about to change
“What about peritoneal?”
I though about it, but how “active” can you really be with a straw sticking out a few inches above your groin?
“Oh, and you have pets anyway…”
Yes, me keeping things sterile would be…well, I’d get an infection every other week.
All evidence suggests that most hemo-dialysis centers sucks. There is no relief.
I’ve found some relief in NOT GOING. But this is not a long-term strategy.