My preface for tonight is that I don’t particularly enjoy writing about dialysis. But I’m here now, so I’d rather get my thoughts out now, rather than when I’m back home tomorrow night.
I was told that quiet hours were between 10pm and 6am. But I am likely to hear Mr. X yakking on the phone well past 11. I’m not naming the dialysis company anymore. If they’re still reading this, fine. But there’s no use complaining to them anymore. I am just $ to them. Others represent more $$$. And the center gets good ratings from corporate. There’s no incentive for them to address my issues in a meaningful manner. And they know I’m pretty much stuck here unless I want to make a decision that adversely impacts my health.
I’ve been considering peritoneal dialysis over the past few weeks. You basically get a straw stuck in your stomach like you’re a Tropicana orange. (It’s a permanent catheter.) You get a pouch surgically inserted into your peritoneal cavity. The dialysis occurs via the transfer of waste into the fluid-filled pouch. You hook your straw up to a cycler machine every night while you sleep to suck out the junk and suck into fresh solution. Or you do the fluid replacements four times a day, if you’re “on the go” as I clearly am. (If I did it, I’d probably opt for the overnight.)
Pro: no dialysis center; home at night; home at 6am
Con: super-sized Capri Sun embedded in my stomach, with a permanent straw sticking out
Con: fluid put into the Capri Sun pack has a bunch of glucose; this can easily cause weight gain; don’t need anymore of that
Con: Capri Sun might not even fit, since I have two kidneys the size of very chubby newborns. I might need to have one of the kidneys removed first. Then whatever kidney function I have drops by 50%. (Pro: 20 years of pain goes away.)
Con: can’t lift heavy items without risking bad stuff
Con: super good hygiene needed; or else catheter site gets infected; or peritoneal cavity gets infected; me keep something sterile?
Con: one room in the house devoted to a month’s worth of big boxes of fluids
I am oversimplifying a lot, and, in general, probably not providing the most accurate description of peritoneal dialysis out there. But that’s not my intention.